NNMG Food Allergic Families
Follow us
  • Home
    • Allergy Friendly Sites
  • Blog
  • Videos
  • Groups
  • Foods to Avoid
  • Instagram

Not Today, Butterflies! A Book About Food Allergy Anxiety

5/10/2021

0 Comments

 

Guest blog by Nicole Ondatje


Picture
Nicole Ondatje has been an advocate for children with food allergies for nearly a decade. She founded S.A.F.E (Supporting Allergic Families through Education) of Boulder County, a community-based organization dedicated to improving the health, safety, and well-being of families with food allergies through increased awareness and education (www.foodallergysafe.org). She has served as a collaborator on an Emergency Medical Services Anaphylaxis Task Force, and as an Allergy & Asthma Network ‘Anaphylaxis Community Expert' and trainer. She lives in Colorado with her husband and her daughter who is severely allergic to peanuts and pine nuts.
 
I have been reading to my daughter since she was born, and we often find that books help us tackle difficult topics together. When she was a year old, she was diagnosed with severe anaphylactic food allergies. I remember being overwhelmed and having extreme anxiety about how to keep her safe, so I poured through the available literature to learn as much as possible and feel empowered.

As my daughter grew, we read age-appropriate children’s books about food allergies that could help her understand her allergy better. At age four, she started experiencing anxiety about her annual allergy skin prick tests, attending birthday parties, visiting family, and eating at restaurants. Searching online, I could find children’s books regarding food allergies and a handful of children’s books regarding anxiety, but there weren’t books that specifically and directly addressed food allergy anxiety in children. I started researching techniques to help children manage their anxiety, testing which approaches helped my daughter the most.

When she turned five, my daughter enrolled in a clinical trial for the peanut patch, adding blood draws and food challenges to her long list of anxiety-provoking situations. My approach was to help her write and illustrate a story in which she overcame her fears of going to her peanut patch appointment by being brave (and getting a sweet treat afterwards). She felt that the story, called “Rosy Goes to the Doctor,” helped her prepare for future appointments. That is how I was inspired to write a children’s book to help my daughter and other children like her who struggle with the daily challenges of living with a food allergy.

The result of this journey is Not Today, Butterflies! A Book About Food Allergy Anxiety. In the story, nine-year-old Quinn experiences several anxiety-provoking food allergy scenarios: her annual visit to the allergist, navigating a play date and a birthday party, being different from her friends, and having to speak up about her food allergies. These experiences generate uncomfortable feelings of butterflies in Quinn’s stomach. Quinn learns different tools to help manage her anxiety and tame the butterflies. Intended for children ages 4-8 as well as parents and caregivers, Not Today, Butterflies! A Book About Food Allergy Anxiety offers some guidance on how to identify signs of food allergy anxiety and helpful ways to teach kids how to manage it. The book provides an engaging and relatable experience for children who are coping with fears and anxiety about their own food allergies.

As a family, we have learned many useful techniques for managing anxiety, all of which are included in the book. Continuing to practice these techniques has helped my daughter feel less anxious about her frequent skin prick tests and blood draws, and more confident in speaking up to friends and even strangers about her food allergies. I truly hope that this book helps children and families with food allergies. It’s based on my own personal experience, research that I’ve done through books, conferences, webinars, and meeting with a child psychotherapist whose own child has food allergies. Before publication, it was vetted by that same psychotherapist as well as my child’s board certified asthma and allergy doctor.
​
Not Today, Butterflies! A Book About Food Allergy Anxiety is currently available for purchase on Amazon, on the website of Olympia Publishers, and through Barnes and Noble.

0 Comments

    Picture
    Lisa Rutter
    Picture

    Archives

    January 2023
    November 2022
    May 2022
    April 2022
    March 2022
    August 2021
    May 2021
    April 2021
    March 2021
    February 2021
    October 2020
    September 2020
    February 2020
    January 2020
    December 2019
    November 2019
    August 2019
    July 2019
    April 2019
    January 2019
    October 2018
    August 2018
    July 2018
    June 2018
    May 2018
    March 2018
    February 2018
    January 2018
    August 2017
    June 2017
    May 2017
    January 2017
    December 2016
    November 2016
    September 2016
    August 2016
    April 2016
    March 2016
    February 2016
    December 2015
    August 2015
    July 2015
    May 2015
    April 2015
    February 2015
    January 2015
    November 2014
    October 2014
    September 2014
    August 2014
    July 2014
    May 2014
    April 2014
    March 2014
    January 2014
    December 2013
    November 2013
    October 2013
    September 2013
    August 2013
    July 2013
    May 2013
    April 2013
    March 2013
    February 2013
    January 2013
    December 2012
    November 2012
    October 2012
    September 2012
    August 2012
    July 2012
    June 2012
    May 2012
    April 2012
    March 2012
    February 2012
    January 2012
    November 2011
    October 2011
    September 2011

    Archives

    January 2023
    November 2022
    May 2022
    April 2022
    March 2022
    August 2021
    May 2021
    April 2021
    March 2021
    February 2021
    October 2020
    September 2020
    February 2020
    January 2020
    December 2019
    November 2019
    August 2019
    July 2019
    April 2019
    January 2019
    October 2018
    August 2018
    July 2018
    June 2018
    May 2018
    March 2018
    February 2018
    January 2018
    August 2017
    June 2017
    May 2017
    January 2017
    December 2016
    November 2016
    September 2016
    August 2016
    April 2016
    March 2016
    February 2016
    December 2015
    August 2015
    July 2015
    May 2015
    April 2015
    February 2015
    January 2015
    November 2014
    October 2014
    September 2014
    August 2014
    July 2014
    May 2014
    April 2014
    March 2014
    January 2014
    December 2013
    November 2013
    October 2013
    September 2013
    August 2013
    July 2013
    May 2013
    April 2013
    March 2013
    February 2013
    January 2013
    December 2012
    November 2012
    October 2012
    September 2012
    August 2012
    July 2012
    June 2012
    May 2012
    April 2012
    March 2012
    February 2012
    January 2012
    November 2011
    October 2011
    September 2011

    RSS Feed

Powered by Create your own unique website with customizable templates.