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Stephanie & Aeverie

4/19/2012

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I have the great privilege of sharing Stephanie Torres' food allergy story.  Stephanie is the group leader of No Nuts Moms Group of Orange County, CA.  When Stephanie expressed interest in starting her own No Nuts Moms Group in California, I was thrilled.  The group started on December 15, 2011.  At the time, we only had No Nuts Moms Group of Michigan, so this was very exciting for our group.  Stephanie has been an amazing addition to the group.  The group is for mothers and children with peanut and tree nut allergies who want to connect with other families in their area. They can interact with each other by attending playdates, events or just by going to the forum that is available in each group.  As a group leader, we only ask that you set up the outings and be the contact person for the group, but Stephanie has gone above and beyond her role.  She connected with a local peanut and nut free bakery and set up a Meet and Greet there for her members.  She now has a great partenership with them.  She also connected with Yael Walters, who is the LA Walk Chair and Advocate at Food Allergy & Anaphylaxis Network (FAAN).  Yael and Stephanie have worked together to set up No Nuts Moms Group's first table at the 2012 Los Angeles FAAN Walk for Food Allergies. 
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Stephanie shared her background and food allergy story with me and I am very thankful she has allowed me to share it with all of you.  Stephanie started her  food allergy journey when she was diagnosed as a teenager.  She is anaphylaxis to peanuts and tree nuts and also has has intolerance to bananas and  milk.  Stephanie had to face one of life's most difficult challenges, when she lost her husband during her pregnancy
After his death, Stephanie found out that she was 15 days pregnant with their first child.  The couple had been trying to have a baby for five years.  Stephanie is a widowed, stay at home mom to a beautiful 2 1/2 year old girl named Aeverie. Like her mom, Aeverie is allergic to peanuts and tree nuts and has intolerance to bananas and milk.  Aeverie was diagnosed with food allergies in September 2011 and then in November 2011, she was also diagnosed with Celiac Disease.

Once Aeverie was diagnosed with food allergies, things changed a lot for them.  Play dates stopped and friends that were once friends were no longer there. Going to the park was also a challenge because Stephanie felt like she needed to disinfect anything Aeverie touched so they only go to the park when children are in school.  Less people so less dangers and wiping.  Stephanie said, "It's been hard but family has always been our best support." 

Stephanie will never forget the day Aeverie had an anaphylaxis reaction to a salad dressing containing walnuts.  They were at a gathering with some family and friends and Stephanie had packed her daughter gluten free pasta.  Someone at the gathering suggested that Aeverie have salad, so Stephanie said it was ok since her daughter loves her vegetables.  A good friend had asked Stephanie what her daughter was allergic to and she told him.  She remembers seeing her friend moving the salad dressing bottle with a suspicious look.  Five minutes had passed and Stephanie looked at the dressing and found out it was a berry walnut dressing.  Stephanie Immediately ran over to her daughter to check on her and she appeared to be fine.  Stephanie took the salad away from Aeverie.  About an hour later, Aeverie was having trouble breathing; she had hives and went into respiratory arrest.  Stephanie then Injected Aeverie with the Epipen and rushed her to the emergency room.  While they were at the hospital, Aeverie had a seizure.  Stephanie said that she was very upset with everyone at the gathering because they knew of her daughter's allergy and still said nothing about the dressing.  In the end Stephanie blames herself for not checking the dressing, but she is very thankful that she acted fast and Aeverie is ok.  Stephanie has learned that when in doubt, leave it out and make questions your number one friend. 

Stephanie hopes that when her daughter goes school, it will be safe and that others will be more aware of the dangers of food allergies.

We are so happy for Stephanie and her No Nuts Group of Orange County.  She wants this group to be a place where kids can make lifelong friends and mothers can also have support.

If you live in California, come out to the Los Angeles FAAN Walk at Long Beach on October 21 at 11:00 AM.  Stephanie and her group plan on raising money for new food allergy research.
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    Lisa Rutter
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